1.) What is your age? 61 born Jan 1st, 1956
2.) Do you have children or grandchildren? 1 son, 41 and 3 grandsons
3.) How long have you been married? Married twice, 6 years first and 26 years second until widowed
4.) Are you on Dialysis Currently? Yes, PD dialysis at home each night since April 2014, 3 years
5.) What type of Dialysis do you currently conduct? Peritoneal Dialysis
6.) What emotional toll has Kidney Failure had on you? Have no idea, since KD began in 2010 I have lost both my parents to aneurysms and my wife to cancer
7.) If you could talk to someone who is interested in donating to you, what would you say? Please give, time to live again before it’s too late!!
8.) What is your blood type? A+
9.) Where are you listed (name of Transplant Center)? Emory University Hospital, Atlanta GA 855-366-7989
10.) Once you receive your Kidney, what do you plan on doing with your future? Spend time with grandkids, fish, work more with Amateur Radio, the gun club and travel. Basically just live again.
11.) What happened that caused you to need a Kidney Transplant? FGN (Fibrillary Glomerulonephritis) unknown origin or cause.
12.) Do you have a specific religion or religious affiliation? Lutheran
13.) How has Kidney Failure/Dialysis impacted your quality of life? Gave me life, pulled over 15 liters of fluid off the first week.
14.) What is the first thing that you plan on doing after you have recovered from your Kidney Transplant Surgery? Thank God and Go to the beach
15.) Add any other information which you think may be peculiar to you and would be of interest to a potential donor. We believe in emphasizing the uniqueness of the individual.
I am a 61-year-old dialysis patient in Macon GA; I have a rare kidney disease of unknown origin, FGN (Fibrillary Glomerulonephritis). My previous doctor of over 20 years missed it; I was already in Stage 3 kidney failure when diagnosed with KD in Oct 2010 after changing doctors due to extremely high blood pressure, my only symptom. I have been on the transplant list at Augusta University Hospital in Augusta GA since Nov 2011, transferred all my time to Emory in Atlanta last November. I am on the wait list for a deceased kidney which is not the first choice for anyone. A deceased kidney can last as little as 10 years, a live kidney up to 30 years. I have performed PD dialysis at home each night for two years now. I am tired of being tied down to my machine for 9.5 hours here at home each night, weekly blood draws, iron infusions, Epogen injections and all the other health issues that come with end-stage renal failure. I want my life back! It also would be nice to see the light at the end of the tunnel with out-of-pocket medical cost each year, even with decent health insurance I can only stand so many years of the cost.
My passions and hobbies have been deeply affected by my kidney disease. I am a person of deep faith and a current member of the Lutheran Church of the Redeemer. I am a licensed Amateur Radio Operator, KE4FGC, member, and past president of the Macon Amateur Radio Club, Sons of Confederate Veterans and Middle GA Camera Club. I am a former state licensed EMT, retired after 33 years with the U S Postal Service, Manager of Field Maintenance Operations for the South GA District. I also used to enjoy bass fishing; my boat has sat idle now for the most part of the past five years.
Thank you for expressing interest and showing your support of my need for a living kidney donor.
I would like you to know that the process of living kidney donation is safe, and if you or someone you know would like to donate, then please send me a message (below). Thanks again!
What is the Altruistic Living Donor Program?
The Altruistic Living Donor Program matches altruistic (selfless) donors with recipients awaiting transplantation. The transplant team is available to fully evaluate all potential living donors, whether living-related, emotionally-related or altruistic. The Renal and Pancreas Transplant Division is experienced in the evaluation and management of all living donors.
Click here to learn about how safe Living Kidney Donation really is.
Click here to learn more about the urgent need for more kind-hearted, generous potential Living Kidney Donors like you!
Hear From An Expert:
A minimally invasive procedure for kidney removal has helped increase the number of donations by living kidney donors in the past 10 years. Laparoscopic nephrectomy requires only a few small incisions and a shorter recovery time.
Laureen Gerzack is an example of the highly specialized, complicated cases typically seen and treated at Mount Sinai. Over the years, Laureen's kidneys had been badly damaged by diabetes. It came to a point where complications caused by diabetes prevented Laureen from having life-saving dialysis. She needed a kidney transplant or she would die.
Why Dylan Donated His Kidney:
The kidney transplant wait list has been increasing sharply in the US over the past two decades. Most transplants come from deceased donors — people who elect to donate their organs when they die. But there's another large source of potential kidneys: living donors. Since we have two kidneys, most people can share a kidney with other people. Most living donors give a kidney to someone they know, like a relative or a friend. But there are also non-directed living kidney donors, other wise known as altruistic donors or good samaritans. Watch this video to see the story of one such donor, Dylan Matthews.
“If it can help someone, my goodness yes, do it. What’s the downside?” - Marc (Living Kidney Donor)
Marc is a pragmatic man. A former venture capitalist and the current executive vice president of the Steadman Hawkins Research Foundation, Marc didn’t get where he is today by letting emotion rule the day. To Marc, life is about analyzing the facts and making a decision accordingly. Nothing more. “But, there are times one has to say, ‘What the heck? Go for it,’” he says.
So when his older brother needed a kidney, Marc gave him one, and he did it without a ton of emotion or debate.
“If you see someone standing in front of a dangerous situation, you do something to stop impending disaster,” Marc said matter-of-factly. “It’s what we’re supposed to do.”
Marc’s older brother, Alexander, was diagnosed with kidney disease before he was old enough to walk. Back then, the doctors told Alexander’s parents he probably wouldn’t live to enter kindergarten. But he did. Then the doctors said he wouldn’t live to see his 10th birthday. But he did.
The ominous predictions continued, but his will to live always won out. As medications advanced, Alexander was able to control his disease without dialysis. As children, Alexander’s three brothers probably didn’t know that Alexander’s health—even his ability to live one year longer—was so precarious. “I don’t think that we were ever fully aware of that. We just knew our brother was sick,” Marc recalled.
When Marc was about 12, he remembers telling his brother he would give him a kidney if he ever needed one. Thirty-two years later, in August 1996, Alexander took him up on that offer.
By now Alexander’s kidneys had deteriorated to the point where it was clear he might not survive without a new kidney. Marc immediately asked to be tested to see if he would be a match.
“It was just a no-brainer,” Marc said. Even back then, he didn’t really see it as that big of a deal.
“This is just one of the things I’ve got going on in the next couple of weeks,” Marc recalled thinking. “I’ve got meetings, a new business venture, a new home and other things I’m doing as well.”
Marc was a match—which he always sensed he would be—and the surgery was scheduled. Before the operation, Marc was in great physical health, and his brother obviously wasn’t. For a short time, the surgery flip-flopped that. Now Marc was recovering from major surgery, but Alexander was immediately feeling better because he had a new kidney that was doing its job. But that didn’t last.
About six months after the surgery, Alexander developed complications with one of his medications, and began to have some rejection reactions. The doctors were advising that he get rid of the donated kidney and go on dialysis. He called Marc and asked for his opinion. It was his kidney, after all.
“It’s yours now. You can do what you want with it,” Marc recalled telling his brother. Together they assessed different treatment options that could be done while preserving the donated kidney. Ultimately, Alexander’s condition improved. That was nearly 13 years ago. Today, Alexander is retired and living with his wife in Florida.
Marc said he never really suffered any effects as a result of donating one kidney. An avid bicyclist and skier before and after surgery, he says nothing has changed in his life. Marc doesn’t think too often about his choice to give his brother a kidney. Occasionally, he’s reminded by the scar, but even in retrospect, the decision was simple. And he hopes others will consider doing the same.
Frequently Asked Questions About Living Kidney Donation:
Who can be a donor?
To qualify as a living donor, an individual must be in good health, free from any serious medical problems and between the ages of 21 and 60.
What are the risks involved?
Donating a kidney does not have any long-term effect on health. Donors may experience a slight rise in blood pressure and a small amount of excess protein in the urine following surgery. There is no greater risk of developing kidney failure after donating at kidney than anyone in the general population.
Are there activities that I will not be able to do in the future if I choose to donate a kidney?
In general, donating a kidney does not have any long-term effect on health. Some restrictions do apply following donor surgery, including reducing or eliminating the use of NSAIDS and avoiding any activity that may cause injury to the surgical area.
Who makes the final decision on potential donors?
Based on the evaluation results, the Transplant team (comprised of nephrologists, nurses, social workers, dieticians and other transplant specialists) decides whether or not to proceed with a living donor kidney transplant as the best therapeutic option.
Who pays for the donor's medical expenses?
The recipient's insurance covers all of the donor's evaluation and hospitalization costs; however, it does not cover lost income, transportation costs or personal expenses. The transplant financial advisor reviews the potential donor/recipient procedures and associated costs carefully prior to the evaluation.
How long will I be in the hospital?
Most donors remain in the hospital for two to three days.
What is the recovery process like?
Most kidney donors resume normal activities four to six weeks after surgery. Donors are not able to drive for three to four weeks after discharge and are not permitted to lift heavy objects. You may need assistance with daily living activities during this time.
How long will I be out of work?
Depending on the nature of the work, donors typically return to work between 10 days and two weeks.
What happens if I decide not to become a living liver donor?
At any point, for any reason, the evaluation process can be stopped. The recipient will remain active on the transplant list and is free to find another potential living donor.
Chief Medical Officer (United Network for Organ Sharing) Dr. David Klassen (Nephrologist) said in a Huffington Post article, "I’ve also witnessed the results of the severe organ shortage in this country. Too often I’ve lost patients because the organ they needed did not come in time. Too many lives cut short. Too many dreams unlived." The following are a few very sobering stats which Chronic Kidney Disease and Dialysis patients should share as well as their loved ones:
90,000 - The number of Dialysis patients that die every year according to Renal and Urology News.
121,076 - The number of people currently waiting for a lifesaving organ in the United States, as reported by the United Network for Organ Sharing.
100,269 - The number of patients awaiting a Kidney Transplant specifically. This suggests that approximately 80.9% of the entire organ transplant waiting list is made of individuals in need of a kidney. It is important to note that living kidney donation is very safe and if found to be a match, a donor would undergo a rigorous health evaluation before donating to ensure good long-term health outcomes.
22 - The number of people who die every single day, waiting for a transplant.
4,500 - The number of Chronic Kidney Disease patients that die every year waiting for a kidney transplant, as noted by the Living Kidney Donor Network.
6 - The number of people added to the transplant wait list every hour, reported by Huffington Post.
0 (zero) - The number of major religions that are against their members donating an organ. All major organized religions in the United States are favorable of organ and tissue donation and most likely consider it an act of charity.
Take A Moment To Learn What A Difference You Could Make:
The Need For Living Kidney Donors
“There are about 90,000 people waiting for kidney transplants in the United States,” says Dr. Gibney. “There are about 14,000 kidney transplants a year. Each year, more people are in need of organs and get added to that list.
So that’s one of the things that makes living donation so important is that there’s a fairly limited supply of organs. If there are friends or family members who can give, that can save lives and really extend people’s lives by years and years.”
If you would like to share Bill's story via your publication, then please send a direct message below.